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Paralyzed Veterans of America (PVA), a congressionally chartered veterans service organization founded in 1946, has developed a unique expertise on a wide variety of issues involving the special needs of our members veterans of the armed forces who have experienced spinal cord injury or dysfunction. PVA will use that expertise to be the leading advocate for: - Quality health care for our members - Research and education addressing spinal cord injury and dysfunction - Benefits available as a result of our members military service - Civil rights and opportunities which maximize the independence of our members and all people with disabilities. For more than 60 years, PVA has fought for our veterans who answered the call when our nation asked for their service . . . and in return, they have given up their freedoms to protect ours.
The National Scleroderma Foundation is a 501(c)(3) nonprofit organization founded in 1998 to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks. Supported by a network of thousands of individuals across the United States, the Foundation helps those living with scleroderma by providing support and education at the same time that it funds peer-reviewed scleroderma research. Since its founding, the Foundation has committed over $30 Million to discover the cause, understand the mechanism, and overcome scleroderma forever. The Foundation is home to the National Scleroderma Conference—the only educational program of its kind and scope in the U.S.—which provides access to leading scleroderma experts and up-to-date information while serving as the central meeting ground for the scleroderma community. In addition, the Foundation's Stepping Out to Cure Scleroderma walks are the country's premier awareness and fundraising events which are organized by the Foundation’s local chapters and take place throughout the year at multiple locations and virtually across the country. The Foundation is led by a dedicated, volunteer Board of Directors that exercises its fiduciary responsibilities, an extraordinary, volunteer Medical & Scientific Advisory Board comprised of world-renowned physicians and scientists, and an exemplary professional staff committed to advancing its mission through the organization's cultural values of care, connection, diversity, integrity, meaningful work, and trust.
Shriners Hospitals for Children — Boston is a highly specialized pediatric surgical care center located in the heart of the city. It is considered one of the world’s preeminent hospitals in the treatment of children with severe burn injuries, complex skin conditions, and cleft lip and palate. Affiliated with Massachusetts General Hospital and verified by a joint program of the American Burn Association and the American College of Surgeons, Shriners Hospitals for Children — Boston meets all of the demanding standards for organizational structure, personnel qualifications, facilities resources and medical care services to ensure the best possible outcomes. All members of our staff are dedicated to providing the highest quality care in a family-centered environment.
Mission MSA (formerly the Multiple System Atrophy Coalition) is a positive beacon of hope standing up to a little known, rare, insidious disorder. Mission MSA has a primary purpose of assisting researchers to find a cure. In the meantime, Mission MSA also provides much needed patient and caregiver support, educational resources, and advocacy to create awareness and to fight for issues important to the MSA community. F/K/A The Multiple System Atrophy Coalition
Connecticut Children's Medical Center is dedicated to improving the physical and emotion health of children. The people of Connecticut Children's Medical Center embrace a comprehensive view of child health and strive for preeminence in helping each child reach for and achieve maximum potential and independence. We stress excellence, innovation and leadership in providing the highest quality service, education and research.
The Cornelia de Lange Syndrome (CDLS) foundation is a family support organization which exists to ensure early and accurate diagnosis of CDLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CDLS and others with similar characteristics make informed decisions throughout their lives. Reaching out, providing help and giving hope.
The mission of Tidewell is to help people live well by providing care, comfort and compassion. This is accomplished by providing the highest quality of care to patients living with advanced illness and their families. The primary goal is to honor patient and family choices through individualized programs and services.
National Stroke Association’s mission is to reduce the incidence and impact of stroke by developing compelling education and programs focused on prevention, treatment, rehabilitation and support for all impacted by stroke. NSA is part of American Stroke Association, a division of the American Heart Association.
The Child Cancer Fund was founded in 1994 by a group of Jacksonville, FL parents whose children were being treated for cancer; they understood the stress, anxiety and heartache of a childhood cancer diagnosis. We provide practical, emotional, financial, and educational support to children and their families every step of the way to navigate the challenges of childhood cancer.
The mission of Hospice of the Sacred Heart is to provide comfort, care, hope and choice to patients and their families while guiding them through their end of life journey.
The mission of the Hydrocephalus Association is to promote a cure for hydrocephalus and improve the lives of those affected by the condition. This will be accomplished by collaborating with patients, caregivers, researchers, medical professionals and industry, raising awareness and funding innovative, high-impact research to prevent, treat, and ultimately, cure hydrocephalus.
Food For Thought's mission is to foster health and healing with food and compassion.